CONTEXT

Many physically disabled adults who require physical support for their daily activities have no choice to stay with their parents who will take care of them until they cannot do so or to live in an institution a CHSLD or an intermediary resource.

 
This situation creates constant stress on the parents who have to juggle their role as a permanent caregiver with work, family life and eventually with illness and aging. For these adults, dependant on their parents, this situation leads to a loss of self-esteem, guilt and constant anxiety.

 

The cornerstone of the social integration of people with limited mobility is adapted affordable housing with adequate home care services.

 

Since 2004, the MSSS’ orientations recognizes the importance of «supporting the creation of non-institutional residential environments, integrated into the community, that meet the needs and the choice of physically-disabled people. »

According to l’Institut de la statistique du Québec (ISQ, 2016) [1]: In Quebec, almost half of people fifteen or older, who are living with a disability and need support, do not receive it or do not get enough of it. This lack of support particularly affects those who are between the ages of 15 and 64 and who live with physical disabilities.

 

The lack of support or inadequate help can lead to significant consequences on a person’s health (injuries, stress...) and on the use of healthcare services:  frequent visits to doctors and emergency rooms, increased hospitalizations. Finally, the lack of support can lead to a loss of independence and to institutionalization.

 

According the  Office des personnes handicapées du Québec (2017)[2], among the people who receive home care services: 

 

  • 72% receive help through volunteer,

  • 26% through an agency or a person that they or their family pay, while only ,

  • only 14% receive it through someone paid, fully or  partially, by the CLSC

In 2013-2014, almost 1 in 10 user living in a CHSLD was less than 65 years old.

 

[1] Institut de la statistique du Québec, Zoom Santé, mai 2016

 

[2] Rapport d’évaluation de l’efficacité de la politique gouvernementale À part entière : pour un véritable exercice du droit à l’égalité, 2017

ORIGIN OF THE PROJECT AND HISTORY

"In 2009, my physically disabled daughter and I searched for several months for an apartment with services that would allow her to live independently and continue to live an active life. 

After six months of fruitless searching, we decided that Melanie would live independently in her own apartment and that her family would provide the support services she needed.

 

We realize that this is not a sustainable solution if Melanie’s health deteriorates or as our capacity to help her is reduced as we age. Mélanie’s biggest fear is that she will eventually have to move into a CHSLD. 

 

To offer a different solution for her and others, we decided to begin the process of developing an adaptable housing project with services that would offer residents the opportunity to live independently and autonomously."

 

             -Lorraine Lebel, Founder and President

 

ÉquiToît officially became a non-profit organization on July 14 2017. However, work started in January 2014 with the creation of a committee made up of physically disabled people and natural caregivers, as well as representatives from the Centre de réadaptation Lucie-Bruneau and the CSSS Cavendish.

 

Our project was based on Habitations Pignons sur roues. It seeked to meet the needs of people with limited mobility who wanted to live in NDG or in the surrounding neighborhoods. However, since development opportunities for social housing in Montreal are very rare, and even more so in the target area, we extended our search for real estate to the center- west and center-south of the Island of Montreal.

 

In december 2017, we learned that the SHDM had vacant apartments in a building situated at 4400 West Hill in NDG. It was an extraordinary opportunity, especially since the SHDM was willing to reserve them, while we found the financing for the 24/7 home care services. Negociations with the Réseau de la Santé et des Services sociaux started in December 2017 and continued until July 29 2018, when the MSSS authorized our project for 7 residents. On September 4 2018, ÉquiToît signed an agreement with the CIUSSS centre-ouest of the island of Montreal (CIUSSS-CODIM) who will provide the home care services for the clientele. Integration of the project will take place gradually during the fall of 2018 and winter of 2019, as the adaptations of the apartments are done.

VISION & VALUES

Physically disabled adults with limited mobility who are between 18 and 65 years of age and are intellectually autonomous, must receive the needed physical supports to be able to live independently in the community within an environment that is as close to « normal » as possible. This will allow for people with disabilities to be better integrated and better able to contribute to society.

   

ÉquiToît’s values are:

  • Independence

  • Quality of life

  • Social Inclusion

CONCEPT

The original concept for the project, defined by the committee and supported by ÉquiToît’s Board of Directors is not the same as the project authorized by the MSSS in July 2018.

 

Convinced that our concept is still relevant, we present it to you here. It includes 15 adapted apartments with 24/7 services. Among these 15 apartments, 10  units will be reserved for people who need 20 to 35 hours of home care per week.

 

The other 5 units will be for people who need less services but who require occasional unplanned services, to avoid repetitive and frequent hospital stays because of a temporary fluctuation of health., or a fall leading to injury. 

According to our vision, the services offered would be the following:

  • an individualized service plan

  • coordination by an onsite supervisor

  • services given by an certified ASSS, available onsite 24/7 including help for getting up/going to bed, personal hygiene, help for meals (serve, heat up, cut up…)

  • help for domestic activities: cleaning, laundry, change the bed, wash the dishes, put away groceries,  take out the garbage, preparations of meals...

TEAM

ÉquiToît’s  2018-2019 Board members are :

 

Lorraine Lebel

President

 

Mariloue Daudier

Secretary-Treasurer

Lilianne Charron

Administrator

Danny Campbell

Representative of tenants

Monick Coupal

Administrator

Mylène Mantha

Representative of tenants

Nathalie Farley

CIUSSS du Centre-Ouest-de-l’île-de-Montréal

 

Members of the communication committee are:

Mariloue Daudier

Lori Goodhand

Mylène Mantha

Didier Rabette